Families in Suffolk raise growing concerns to changes to the Welfare Reform Bill and benefits

The bill looks to overhaul how support is distributed but for many, navigating the system is already a challenge.

Disability Living Allowance form with black and blue pen
Author: Jasmine OakPublished 3rd Jul 2025

As the Welfare Reform Bill moves forward, many families, particularly those with children with special needs and disabilities, are raising concerns about the potential negative impact it could have on their lives. While the bill aims to overhaul the benefits system, questions are being asked about whether these changes could create further barriers for those who need support the most.

Accessibility of Benefits: A Growing Concern for Families

One of the most pressing concerns among parents and carers is the accessibility of the benefits system. The bill seeks to make sweeping changes to how benefits are accessed and distributed, but many are already finding it difficult to navigate the current system.

Claire Smith, Chair of the Suffolk Parent Carer Forum, shared her worries about the complexity of the forms and the challenges that come with filling them out. She says, “The forms are already difficult to fill out, and it’s hard for parents to navigate. Adding more barriers only makes things worse.”

The difficulty in filling out forms, combined with complicated requirements and limited support, has created a system that feels inaccessible to many families. This issue is compounded by the feeling that the government is adding unnecessary steps to a process that is already hard to manage, particularly for those in vulnerable situations.

Impact on Parental Rights and Children’s Safe Spaces

The Welfare Reform Bill has also sparked concerns about the rights of parents to make decisions for their children, especially when it comes to home education and the safeguarding of children’s private spaces.

Claire expressed a deep concern about the potential loss of parental choice, particularly for those whose children are home-educated or have special educational needs. “There are a lot of children who are struggling with school. School doesn’t suit them necessarily, and it doesn’t... we’re not one-size-fits-all,” she says.

For many parents, home education is a safe and positive choice, offering children a tailored environment where they can thrive. But as Claire points out, the Welfare Reform Bill could give local authorities more power to intervene in these arrangements, potentially taking away the control that parents have over their children’s education.

Claire warns, “One of my big concerns with this bill is the powers being taken away from parents, their rights, their right to choose for their child that they know best.”

Perhaps the most poignant concern raised by Claire is the potential invasion of children’s private, safe spaces. For children with mental health issues, anxiety, or special educational needs, their bedroom is often the only space where they feel secure. If local authorities were to gain access to these spaces, it could undermine their sense of safety and exacerbate existing mental health struggles.

As Claire explains, “When children don’t feel safe in school or the community, their bedroom becomes their sanctuary. But if local authorities can access that space, it can feel like an invasion.”

She emphasises that, for children facing these challenges, their bedroom is often their only safe space. “To have somewhere where you feel safe is paramount. It is everything,” Claire says.

The Need for More Understanding and Support

Despite these serious concerns, Claire believes there is still hope. She advocates for a more thoughtful, case-by-case approach to welfare reform. “Everything is a case-by-case situation. We can’t just generalise. We need to look deep into each situation,” she says.

This personalised approach, she argues, would help to ensure that people are receiving the support they truly need without adding unnecessary barriers or infringing on personal rights. Claire believes that the government should be focused on understanding why people claim benefits, identifying the root causes, and working to provide meaningful support tailored to each individual situation.

The ongoing discourse about the welfare reform bill shows how vital it is to take into account the experiences of families and carers who are directly impacted by these changes. As Claire poignantly concludes, “We need that freedom of choice. We need to have parents who can make decisions for their children because parents know their children best.”

What’s Next?

As the Welfare Reform Bill progresses, the government faces mounting pressure to listen to these concerns and ensure that the changes it introduces truly benefit those who need support the most, without compromising the safety and autonomy of vulnerable children and their families.

In the coming weeks, it will be important to watch how the government responds to the calls for greater understanding, clearer processes, and more support for families navigating the complex benefits system.

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