Anxious wait as hearing decides if a drug treating two Cheshire children should be funded
Ollie and Amelia Carrol have the fatal Battens disease
Last updated 19th Jan 2018
Medical experts are deciding whether a drug currently helping two children from Cheshire battle a fatal disease
should be made available on the NHS.
Ollie and Amelia Carrol from Poynton both have Battens disease which causes a child to lose their ability to walk, talk, eat and drink.
A treatment trial they're taking part in at Great Ormond Street Hopsital is dramatically slowing the effects down - but could soon be stopped due to funding.
Listen: Our Chief Reporter Michelle Livesey's been speaking to their parents Lucy and Mike..
A decision is expected over the next few weeks.