HIV stigma 'still exists' in Sussex, says sexual health charity
The Terrence Higgins Trust are trying to change that
Last updated 7th Feb 2021
The TV series 'It's A Sin' has got many of us talking about the HIV crisis of the early 90s and that comes as there is encouragement this week to go and get tested.
The Terrence Higgins Trust are trying to get rid of the stigma around the condition.
Public Health England figures show Brighton and Hove has the highest incidence of the condition of anywhere in the South East, affecting 7.94 in every 1,000 people aged 15-59 in the city - more than four times the regional rate of 1.88.
Nigel French works for them and says a lot has changed since the time the Channel 4 show depicts:
"Medically, things have come on incredibly.
"Having a diagnosis of HIV is a life-changing diagnosis, but there is life after diagnosis.
"People can live long and healthy lives, but the key, as with a lot of conditions, is to know your HIV status."
All this week THT are promoting the importance of testing, which can happen at home.
Some still holding onto myths
The hit Channel 4 show is set at the start of the AIDs crisis, thirty years ago, but Nigel told us many people are still holding on to some of the misconceptions seen in the show.
He said:
"Some people still hold onto myths around 'oh I can catch it through daily contact, I can catch it through sharing a mug with somebody'.
"For that reason, it is still really difficult for people to share their diagnosis with family and friends, for fear of that rejection."
This is why Nigel feels it's important to get us talking about HIV, so the stigma can be lost.
A push for more testing
New online research has revealed just one in five adults have ever tested for HIV in the UK, despite testing initiatives to find the thousands living with undiagnosed HIV being crucial for the Government achieving its life-changing goal of ending new cases of the virus by 2030.
The data – which the Trust have released to mark National HIV Testing Week and based on YouGov polling of over 2,000 UK adults – also shows uptake is far lower in heterosexuals, with just 16% having previously tested compared to 58% of gay and lesbian respondents surveyed.
This comes as new figures from Public Health England (PHE) show the impact of COVID-19 and social distancing on how people are testing for HIV.
Between January and August last year there was a 14% increase in HIV testing via online orders and taken at home compared to the same period in 2019.
Despite this, there was a worrying drop in overall testing in the first half of 2020 as a result of lockdown.
Due to the restrictions in force across the country, the advice from both charities and sexual health services is to test for HIV safely from home to protect against coronavirus, with thousands of self-sampling (postal testing) kits made available by PHE to order for National HIV Testing Week, which started on Monday 1 February.
The charity say that routine HIV testing needs to be drastically increased to find the estimated 6,000 people living with undiagnosed HIV in the UK.
That includes increasing testing figures outside those groups traditionally most impacted by HIV – with heterosexuals making up four in 10 (38%) of those diagnosed in 2019.
'Unacceptably high' rates of late diagnosis are also a big issue, with 42% of those receiving a HIV diagnosis getting it after their health is already suffering.
According to PHE, the rate of late diagnosis is even higher in heterosexual men (52%) and people aged 65 and over (59%).
Elton John shares emotional message about his love for AIDS drama It's A Sin
The new survey research also found an urgent need to better publicise the option to test for HIV at home. Just 16% of UK adults knew they could test for HIV at home with 13% of those that have had a test before, ever having actually tested that way.
The test at home message appears to be a welcome one as our research also found overwhelming support for testing at home during lockdown with over half (58%) agreeing they would rather test at home during the lockdown than in a sexual health clinic.
This is a far cry from how things were in the past, with new Channel 4 drama It’s A Sin documenting how the results of an HIV test used to take six weeks.
Now testing is quick and straightforward, with some tests giving a result within just 15 minutes.
Ian Green, Chief Executive at Terrence Higgins Trust, said:
"Despite all the progress made in the fight against HIV, there is still a shockingly high number of people out there who have never tested for the virus. If we’re to find all of those living with undiagnosed HIV in this country, that needs to change and quickly.
"Unlike in It’s A Sin, where the characters wait weeks for their results, HIV testing is now straightforward and easy to do – with the best option during the coronavirus pandemic to test at home. Plus, thanks to huge improvements in medication, someone diagnosed promptly and accessing treatment will live as long as anyone else their age.
"HIV can affect anyone – no matter your gender, age, sexuality of ethnicity. Which is why testing everyone who comes into contact with our healthcare systems is crucial for achieving the goal of ending new HIV cases by 2030. To ensure that the coronavirus pandemic and lockdown doesn’t set us back in achieving that goal, we’re encouraging everyone to order a free HIV test kit to do at home this National HIV Testing Week."
The charity have produced this list of things you should know about HIV in the 2020s.