Parkinson's sufferers in Yorkshire hiding symptoms
Two fifths of people with Parkinson's in Yorkshire have felt the need to hide their symptoms or lie about having the condition.
Two fifths of people with Parkinson's in Yorkshire have felt the need to hide their symptoms or lie about having the condition.
Parkinson's UK say it's because sufferers are too embarassed and fear they could be judged by others.
The charity also says it means people are delaying coming forward for vital help and support.
Ricky Upex was diagnosed 6 years ago at the age of 43. He says he's had many negative experiences when out in public and often gets stared at. He told Hallam:
"I went to Mcdonalds with my partner and I struggled to get in the seat and I couldn't hardly walk and I couldn't eat my burger and these lads were laughing at me and it hurt me.
"If I stumble, because I can't really walk very far now, people used to think I was drunk so I wear a t-shirt saying "I'm not drunk, I have Parkinson's" but it's not just Parkinson's disease, it's every disability where people judge you. I am still the same person and I can still do everything mentally it is just physically.
"When we used to go out to eat, my partner had to feed me sometimes because I can't always feed myself and I found that really hard but it doesn't bother me anymore and I just let people stare at me if they need to but I would rather talk to people and let them know what's happening with me.
"It's very difficult, the life changes are the worst thing as I can't go out for walks anymore and I sit in this chair most days, all day and that is the worst thing. It changes the things you can do but not how you are as a person."
Steve Ford, Chief Executive at Parkinson’s UK said:
“No-one should feel alone in dealing with a diagnosis of Parkinson’s. Too many people are struggling with their diagnosis alone because of fear of what people might think, say or do.
“It’s worrying that many people with Parkinson’s, for a wide range of reasons, are not able to access the help they need - and it’s having a devastating impact on their emotional health. We are determined that each and every person with Parkinson’s is aware of the support available so they can feel equipped to have these difficult conversations.
“We know that the right support, whether through family, friends or Parkinson’s UK, is vital for those with the condition, to help them come to terms with their diagnosis and know that they’re not alone. We are here to help people find the support they need, when they need it.”