"We don't want to be insulted", says Leicester daughter of blood scandal victim awaiting compensation

Yesterday the Infected Blood Inquiry finally published the findings of its report into the blood scandal

Sarah Adams pictured with her dad Alan
Author: Mick CoylePublished 21st May 2024
Last updated 21st May 2024

A woman from Leicester whose dad was infected with HIV and hepatitis C through treatment for his severe haemophilia, says families affected by the contaminated blood scandal don't want to be "insulted" by a "very small and lame offer" of compensation.

Ministers have earmarked around £10 billion for a compensation package for those affected, which is expected to be announced on Tuesday (21/5) or Wednesday (22/5).

It's after the final report from the Infected Blood Inquiry was published yesterday.

Sarah Adams, whose dad Alan has lived with serious health problems his whole life due to contaminated blood, said: "Compensation is important to our family. I'm not going to lie, it's going to make everybody's lives just that little bit easier. My dad can finally start living his life instead of just existing."

"I do believe that if compensation is paid out and it is the correct amount, let's face it we don't want to be insulted by some some very very small and lame offer, then yeah I think that will be the end of this now, you know this book is now closing, we're on the epilogue now let's say."

She added: "Compensation won't heal all wounds; it's not going to bring back those that we've lost; it's not going to bring the health back of those that are suffering, but it's some way of acknowledging the atrocities that occurred and it's some way of going forward and helping those people now live lives, so compensation is important."

"Gaslit for generations"

The infected blood scandal has been labelled a national disgrace by campaigners as they told of being "gaslit for generations".

More than 30,000 people were infected with deadly viruses while they were receiving NHS care between the 1970s and 1990s, in a disaster described by inquiry chairman Sir Brian Langstaff as a "calamity".

READ: 'Catalogue of failures, calamity, cover-up' - Infected Blood Inquiry report finally published

Campaigners said many involved in the scandal's long history will see the final report as "the beginning of the end" of the fight for justice.

Blood scandal is 'a national disgrace'

Kate Burt, chief executive of The Haemophilia Society, said: "The scale of the tragedy is unimaginable and the horror that unfolded for them over four decades ago is still being felt today.

"So it's going to take time to absorb everything that Sir Brian Langstaff has said in the report but the main findings are that fault was done, that wrong was done, on an individual and organisational and a systemic level.

"And that is a national disgrace."

Asked about the report's references to evidence of a cover-up, Andy Evans, of campaign group Tainted Blood, told a press conference on Monday: "We have been gaslit for generations.

"This report today brings an end to that. It looks to the future as well and says this cannot continue, this ethos of denial and cover up."

Politicians 'should hang their heads in shame'

Clive Smith, chairman of The Haemophilia Society, said the finding is "no surprise" and is something campaigners have known for decades.

He went on: "I think many of the politicians should hang their heads in shame."

"No single person is responsible for this scandal. It's been the result of generations of denial, delay and cover-up," Mr Smith continued.

"And whilst there might be an apology later today from the Prime Minister, it's not just the Prime Minister who holds responsibility and accountability for this.

"There are many others out there, and I would expect over the coming days and weeks for many more people to come forward and say 'sorry, I'm sorry for my part'. And if they're genuinely sorry they will help implement the recommendations that Sir Brian has recommended today."

More could have been done to help victims

The Hepatitis C Trust called the report's finding "shocking" and said it revealed much more could have been done to prevent hepatitis C and HIV infections from blood and blood products.

"Over decades, instead of acting to protect people, the Government and the health system have sought to delay, defer and hide the truth from the people they'd harmed," the charity said.

"They must now take full responsibility. We urge the Government to stop its endless delays and to act. Already 3,000 people did not live to see this day, and time remains of the essence."

The Terrence Higgins Trust, which described the report as a "seismic moment" for those infected and affected by the scandal, called for a full and meaningful apology from the Prime Minister.

The charity's chief executive said: "The Government must now act - and do so at genuine pace.

"An apology must now be offered by the Prime Minister, on behalf of this and all previous Governments. A true apology cannot just be an expression of regret.

"Compensation must go hand-in-hand with acceptance of culpability by the Government for the infections and subsequent cover-up."