Eleven year old campaigner made honorary director of hospital trust

Lottie Byron-Edmond was recognised for raising awareness of organ donation

Lottie Byron-Edmond with Sir Richard Ibbotson (Chair), Liz Davenport (Chief Executive), Dr Nicola Freeman (Consultant), Deborah Kelly (Chief Nurse) and her parents Chris and Julie
Author: Simon McleanPublished 15th Feb 2023

Bosses at Torbay hospital have made a girl who received a liver transplant at just five weeks old an honorary director of the trust.

Lottie Byron Edmond was given only two weeks to live when she was born there - but became the youngest ever survivor of a liver transplant when a donor organ became available.

The now eleven year old has been recognised for her commitment to raising awareness of organ donation.

Sir Richard Ibbotson, Chair, Torbay and South Devon NHS Foundation Trust, said: “Last year Lottie shared her story with our Board of Directors and reduced us all to silence (and some of us to tears) by her courage and her compassion for others.

"Her wish for a memorial to say thank you to organ donors and their families touched a chord with all of us.

“I am very proud that today we are making Lottie an honorary director – she epitomises the values that we hold dear and her vision chimes with our own for better health and care for all. In the NHS’s 75th year,

"it feels particularly fitting that we recognise the contributions and potential of our young people as we build our brighter future together.”

On the day that Lottie received her life-saving transplant, her older brother Daniel signed the organ donor register.

Tragically three years later Daniel died as a result of an accident but through organ donation he was able to save and improve the lives of a number of others.

Lottie Bryon-Edmond said: “It is my dream to have a permanent memorial to organ donors and their families. It is my way of saying a massive thank you to donors like my brother Daniel and the donor who gave me their liver. I wouldn’t be here today if it wasn’t for them.”

Lottie’s father, Chris, added: “We are really proud of Lottie and what she has achieved so far. We have made really good progress fundraising and we are grateful to Torbay and South Devon NHS Foundation Trust for helping us identify a place in the hospital for the memorial.

"We still have a long way to go to make Lottie’s dream a reality and would love everyone to get involved.”

You can donate to Lottie's fundraiser here.