Two men from Essex and Suffolk drive through nine countries in four days in aid of Colchester girl
The 'beach boys' take on the European Rally in a weeks' time
John Everett, 42, a vehicle body repairer who lives in Leigh-on-Sea, Essex and Rich Lessemun, 46, an HGV driver who lives in Boxford, Suffolk, met at a Classic VW car club and are taking part in the Two Ball Banger Rally through nine countries in four days, starting in France on August 15. They are doing it to raise funds for six year old, Grace Beverton, who has a rare genetic condition.
There are few rules, but the car must have been bought for less than £789 and fancy dress is obligatory. The two men have chosen a Baywatch theme and plan to compete dressed as lifeguards.
One of the beach boys, John Everett, says "I'm feeling nervous now. But the race is a bit of fun, it’s not about the time taken but there are points and prizes given for things like the best fancy dress, winning the evening pub quiz etcetera. It’s something I’ve been wanting to do for ages and when I heard Rich was up for it too, we thought we’d sort it out and hopefully raise some money in the process.’
Grace, from Colchester, started having seizures when she was just five and half months old. Following several frightening hospital admissions and a barrage of tests, she was finally diagnosed with a mutation of the gene RHOBTB2 (x.1448G>A). Grace is one of only 38 people diagnosed with the condition around the world, possibly only the third in the UK.
Mr Everett says, "it's going to be Grace's 7th birthday whilst we're driving so we're going to have a party for her."
So far, John and Rich have raised £2000 to help fund specialised and intensive physiotherapy sessions to help Grace sit unaided.
Longer term goals might include milestones such as bearing weight on her legs or even standing and walking. There is also likely to be specialised equipment needed, as well as possible adaptations to the family home.
Grace’s Dad Dale, 35, a police officer said: ‘It’s a pleasure to be associated with John and Rich. They are amazing people and show such love towards Grace.