A researcher at the University of Hertfordshire is calling on the term 'assisted' death to be better defined
Patients who took part in the research are said to refrain from speaking to their GPs over fears they could be prosecuted
A new study by researchers at the University of Hertfordshire revealed significant challenges faced by individuals in the UK seeking assisted dying.
The research, conducted by Dr Megan Knights and Dr Harry Dean, which combines perspectives from those considering an assisted death and families of individuals who have pursued it abroad, sheds light on emotional, practical, and legal hurdles.
Dr Megan Knights discussed the research and findings with Greatest Hits Radio:
Impact of Chronic Illness
One of the study’s central findings was the heavy burden of chronic or degenerative illnesses on individuals and their families.
Dr Knights explained: "Participants spoke about the profound toll these conditions take on their quality of life, not just for themselves but for those around them.
"This often becomes a key motivator for seeking an assisted death."
For many, the desire for autonomy over the end of life was paramount.
"Participants expressed frustration that the current UK laws deny them control over such a personal and significant decision," Dr Knights said, particularly when their conditions had no prospect of improvement.
Legal Confusion Creates Barriers
The study also highlighted confusion over what constitutes “assisting” someone in seeking an assisted death.
Dr Knights referred to the issue as a “legal grey area” that makes it difficult for individuals to seek help or even discuss their intentions openly.
"People worry about implicating loved ones, friends, or even medical professionals, which creates significant barriers to accessing the information and support they need," she said.
For instance, obtaining medical records—required by Swiss assisted dying organisations like Dignitas—was a key concern.
"One participant described feeling unable to ask their GP for medical records out of fear of exposing them to legal risks," she added.
Financial and Practical Hurdles
Another significant finding was the high cost associated with traveling to Switzerland, where assisted dying is legal.
Dr Knights explained: "The expense means that, in the current system, only individuals who can afford it have the option to pursue an assisted death.
"One participant compared it to accessing private medicine."
Additionally, the process requires individuals to be physically and mentally capable of traveling, which often forces decisions earlier than they might otherwise make.
"Some participants described feeling pressured to act sooner due to the logistical challenges of traveling abroad for this purpose," she said.
Emotional Strain on Families
Families of those seeking an assisted death also face significant emotional challenges, particularly due to the possibility of police investigations.
Dr Knights said: "Participants shared concerns about the strain this puts on loved ones, who are already navigating an emotionally difficult situation."
This uncertainty, combined with the isolation many feel when they cannot openly discuss their plans, adds to the emotional burden.
"The grey area makes an already complex decision even more difficult for those involved," she added.
Clarifying the Debate
Dr Knights highlighted the importance of addressing these issues, regardless of whether UK laws on assisted dying change: "People in the UK are already seeking assisted deaths abroad.
"Clearer guidance is urgently needed on what conversations can safely take place between individuals, families, and healthcare professionals."
While the research does not advocate for a particular policy, it underlines the need for better support for those making such decisions.
"Whether or not people agree with assisted dying, those who choose this path deserve clarity and dignity." she added.
Broader Implications
The findings come at a time of renewed public and parliamentary debate over assisted dying in the UK.
MPs are set to revisit the issue later this month.
Dr Knights said: "This is a deeply personal and complex issue. These discussions are necessary to ensure people have the right to make informed choices and access appropriate support."
The Parliamentary Office of Science and Technology currently defines the term as follows:
"Assisted dying refers here to the involvement of healthcare professionals in the provision of lethal drugs intended to end a patient’s life at their voluntary request, subject to eligibility criteria and safeguards. It includes healthcare professionals prescribing lethal drugs for the patient to self-administer (‘physician-assisted suicide’) and healthcare professionals administering lethal drugs (‘euthanasia’). It is an offence (in England and Wales) to assist or encourage another person’s suicide under section 2(1) of the Suicide Act 1961. Euthanasia is illegal across the UK under the Homicide Act 1957 and could be prosecuted as murder or manslaughter."
If you or someone you know is seeking support support, you can contact the charity Samaritans.