Roald Dahl's Marvellous Children’s Charity selects Sandwell and West Birmingham NHS Trust for funding

A fully funded specialist nurse will work with youngsters with epilepsy

Author: Majid MohammedPublished 25th May 2022

Roald Dahl’s Marvellous Children’s Charity has selected Sandwell and West Birmingham NHS for funding. The charity will fully fund a specialist nurse to work with youngsters with epilepsy.

Sandwell and West Birmingham NHS Trust, which runs Sandwell, City and Rowley Regis Hospitals beat 35 healthcare organisations to receive funding.

The specialist nurse will support young people move from paediatric care to adult services by providing dedicated care with a “holistic approach”.

Roald Dahl’s Charity will fund the specialist nurse to work alongside the Trust’s paediatric epilepsy service and the existing children’s epilepsy community nurse. In addition, the nurse will work closely with GPs, social care and schools across the region.

The charity states the specialist nurse will “bring together health services around the family, delivering crucial personalised care to those most in need".

Helping 600 families in need

Roald Dahl’s Marvellous Children’s Charity and Sandwell and West Birmingham NHS Trust will partner for fives years to share the cost of a specialist epilepsy nurse.

The Trust estimates 600 families in Sandwell and West Birmingham have children and young people who live with epilepsy and will benefit from the health and social care support the nurse will provide.

Chief Nursing Officer for Sandwell and West Birmingham NHS Trust, Mel Roberts said: “We are delighted to have won funding for this specialist role. The Trust is committed to delivering the best care possible, whether that’s in our community or in our hospitals. This role will ensure that we are able to reach those who need this support as they live with this illness”.

Michelle Kukielka, Head of Programmes at the Charity and herself a former nurse, said: “Our Roald Dahl specialist nurses are experts in their field with the knowledge and skills they need to care for their young patients. More than this, however, is their holistic approach, which sees the child or young person and their families as a whole and never just a health condition”.

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