Edinburgh mum joins families at No 10 demanding better access to medicinal cannabis
Karen Gray joined nine other families to protest at Downing Street
Last updated 19th Sep 2019
Edinburgh mum Karen Gray joined nine other families in London today, calling on Prime Minister Boris Johnson to step in and allow better access to medicinal cannabis for children with severe epilepsy.
They hand-delivered a letter to the PM, urging him to make the medication more widely available.
An invoice was also handed in to the Deptartment of Health and Social Care for the £200,000 that parents say they have spent on private supplies of treatment for their epileptic children.
Karen's son Murray has a rare form of the condition called Doose Syndrome and has had to make several trips to The Netherlands to source the cannabis oil required to treat him.
It can be prescribed on the NHS but campaigners say many doctors still aren't willing to
Speaking us at Downing Street, Karen Gray from East Craigs says it makes a huge difference to her son but that it was not becoming unaffordable.
"We're all find money to pay for this oil, I mean a lot of us are paying over a thousand pounds a month and that's just obsence.
"It's really helping our children so the Government need to step in and help."
Karen made it clear that she and the other families campaigning would not be letting up on the issue, saying:
"I think it's quite embarrassing for them because we're not going to go away, we're going to get worse."
Hear all the latest news from across Edinburgh, the Lothians, Fife and Falkirk on Forth 1. Listen on FM, via the Rayo app, on DAB or on your smart speaker.